Does anyone know where on earth I can find information on males next to Rett Syndrome?

I need information on how it affects their physical vigour. And most importantly there bones. I just need this information on males, and not females. Since males don't usually survive birth if they enjoy retts then it is making it tough to find information on it. Please help?Does anyone know where on earth I can find information on males next to Rett Syndrome?
Hello...my daughter have Rett Syndrome so I know a little bit. Males usually do survive birth but don't typically live for more than a year. Males who hold an extra X chromosome (XXY instead of XY) are like girls near RS and have a comparable lifespan and symptoms. I surmise you are going to have a rock-hard time finding info on bone denisity. I don't think it is publicly available even on the womanly population. Research is still ongoing and the majority of it just started contained by '99, so I doubt you will find any info. My daughter is part of the RS organic history research and they have not published the info nonetheless, but bone density is one of the things it will cover. But you can try searching these sites: www.rettsyndrome.org and www.rsrf.org
Try a Rhett syndrome association . One must exist.
I read one and the same as you did. that males are usually miscarried or die at birth.
Good luck to you.